Hope For Holt

Foundation Profile

About Cystinosis

About Holt

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Past Events

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Click here to donate to The Hope For Holt Foundation

Please check with your employer to see if they do employee matches, as the Cystinosis Research Foundation is a registered 501 (c) 3 non-profit organization. 100% of all donations made to the CRF are used for research. All contributions are 100% tax deductible.

Gifts & Apparel
Visit our online store for fun ways to help. $5.00 of each purchase is donated to The HFH Foundation. http://www.cafepress.com/hopeforholt

Funding Research
Rare diseases often have less funding, simply because there is not as much awareness, and therefore not as much demand. Other than the NIH, (National Institute of Health where Holt is a patient), the only way real progress is made is through the private funding of research. Please visit our website often to see what events we have planned and how you can get involved to help. We also would like to encourage all organizations to make the CRF the beneficiary of any fundraisers you may be considering.

We have partnered with the Cystinosis Research Foundation (www.natalieswish.org) to help fight this awful disease. The work they have done and the money they have raised in such a short amount of time is truly amazing. 100% of all donations go directly to research - all of the overhead is completely underwritten.

The Foundation has created their own scientific review board and make sure that all monies raised are immediately put to work. They have already made significant strides and have tremendously improved the quality of life for the children with this disease. The life expectancy has nearly doubled in recent years due to some of their research. But there is still much work to be done and we need your help.

New Events
Please click here for more information on how to make the CRF the beneficiary of your upcoming event.

For general questions and information contact us here.

If you would like to get updates on upcoming events and general information please fill out the form below:



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